If you have been following along for any time, or have gone back and read some of the old stuff, you know that I have a family member who has a mystery illness that has yet to be figured out. Specialists have looked and they basically have shrugged and said, “Not my system. Check with someone else.” When they are pointing their figers at another bodily system, which leaves us with a bunch of docs point at each other, what does that leave us to do?
We start over, I guess.
Wednesday of last week was spend (at least most of it) in an ER some 50+ miles away. Part of that was to push a referral process along and part of it was the fact that the ER/hospital is not only approved by insurance but is connect to or works closely with the specialist with the insurance parent company/clinic.
Anyway, ER time equals overnight observation and a test that hadn’t been done yet but which we has pushed for with the first specialist. Thursday was mostly spend waiting for a test and then waiting for results. As it turns out, that test revealed nothing other than everything appears to be “normal.”
Yet the doctors that have seen the family memeber agree there is definitely something wrong.
I am at work today but needless to say, I am distracted. It’s been that way since this all started. Hard to focus. Hard to get stuff done.
Actually, it’s hard to do anything in life really. I am constantly reminded or thinking of something than whatever I am doing. I am find that I don’t really enjoy anything because I am always thinking about the other person. They don’t enjoy anything because they can’t physically do it or when they try they suffer the whole time they endure it.
Really, that’s what life has become. Everything is about enduring every activity, interaction, location, meal, or socialization.
Normal doesn’t feel possible any longer.